We were at the hospital bright and early and first two pills were taken. They slipped down very easily and no issues so far. The rest of the day Isabella had a never ending stream of blood draws so they can monitor how long the drug stays in the blood. This is all part of the study.
A friend and someone who knows what it means to have a child with cancer wrote to me last week that she had been for their annual check up and she had forgotten how draining the long days at the hospital were. I too had forgotten, especially when you are sitting around in one department. We did pop to the art room between homework, reading, knitting and getting the odd bite to eat to relieve the boredom. Isabella too was warn out by it all but thankfully nothing traumatic or nauseous about the day. We were home in time for a much needed cup of tea and a scone. Having been revitalized Isabella was ready to get off to choir for her wednesday rehearsals.
No pills tonight and back in the morning with an empty stomach, blood draw at 24 hours and then on with the day and taking the pills. Thereafter we have weekly visit to the hospital, though some will take longer than others and as we move into November only once a month.
We were given our 28 day supply of pills with instructions on when to take them. I am trying to get my head around when they will need to be taken - on an empty stomach (one hour before food or two hours after) and fitting this in with after school activities and dinner and taking each dose 12 hours after the previous dose. But if this is the greatest challenge then that is a good thing. Anyway once we have worked out the timings and let Isabella know, she will make sure we are all on track!
So onwards we go. We'll update you again soon.
Love,
Emma, Gregorio, Isabella and Matilde. xxx
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